The Week in Review
Oct. 7th, 2005 11:44 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
vaxjediHere is the crappy week we have had so far. A large chunk of this is cut and pasted from Eleri since she'd already typed a bunch of it. There are additions from me in there too.
Sunday: Miri has episode. Confusion about stepss to take. Eleri has meltdown & leaves, goes to ER for eval, avoids inpatient bed, comes home.
Monday: Blade has foot worked on, is more intense that usual, is on endorphin rush all morning. Takes week off. Eleri has head examined for face rearrangement. Surgery pending for both jaws. State agencies contacted for help with Miri. Mortgage lender calls and asks for some final numbers. Numbers do not meet what underwriters want... loan application is rejected.
Tuesday: Blade has words with lending agent. Agent promises action, but not results. Eleri has dentist appointment, finds several major issues to address before surgery, first round scheduled for Monday while Miri's at school. State agencies can't find placement for Miri. Lending agent pulls off miracle.
Wednesday Morning: Miri has severe reaction to new medication, meds Dr wants her off that med and to see her asap. asap, in this case, was 1 week later. Blade points out that a week of no meds is Bad Idea, appointment is scheduled for Thursday. Closing paperwork scheduled for Thusday am. Storage unit secured for Daf, because closing is delayed on house. Eleri calls with an official "I want my mommy!" request.
Wednesday Evening: Miri has very bad evening, hurts herself and Blade. Call Dr for advice, advice is to keep her stable until 3:45pm appointment Thurs. Escrow calls. Numbers from lender don't match purchase price, want extra $$. Response is Da HELL?? Too late to deal with, fix on Thursday. Miri episodes continue unabated until 3am, in between small 15-10 minute pockets of sedated sleep. Decision made that we can't keep her stable until morning, let alone late afternoon. Trek down to ER.
Wednesday Night to Thursday Morning: Spent 7 hours in the ER with Mousie to learn a lesson we already knew... if your body is broken there is a place for you, if it's your mind that needs help, you're on your own.
The short version of the story is that Miri's behaviours have been getting worse and worse, and the drug cocktails getting less and less effective, and last night, after multiple hours of hysteria and injury (to self and parents), we finally threw up our hands. Coming on top of the chaos with the house, and my health, and Blade's work, we knew we'd hit rock bottom, and couldn't guarantee her, or our, safety anymore. 7 hours later, all the professionals have many regrets, but the psych ward didn't have the staffing for the care she'd need, there's no sub-acute facilities that meet her needs, and no one really knows what to do except try and arrange more respite hours. So, if you have a violent, developmentally delayed kindergartener, and she needs more professional care than you can give? You're screwed. They give Miri some Risperdal(sp?) and our sitter agrees to take miri for a while so we can get rest
Thursday: 2.5 hours of sleep (fitfully gained, and added to the maybe 1 hour total since 08:00 yesterday) while sitter watches Miri we have to go, pick up the mousie from the respite person, and go back to the Dr, to try and figure out a drug combo that will keep Miri stable enough to go to scbhool, and afford Blade and Eleri some rest. Dr puts her back on Risperdal and is putting her on Lithium, after the requisite battery of tests for Lithium (EKG, blood tests, etc). Blade and Eleri got many cheese fries and food and then settled down to rest while Miri spent the evening at the sitters. Eleri has a Birthing from Within Conference this weekend and we decided she needs to go to get the recharge she needs to be functional. Ryan will be up this weekend for me. Eleri's mom will be up on Monday. Oh, and on the house... the paperwork for the seller's messed up situation hasn't gone through. So we can't actually sign.
Friday: Talk to the lender for the house. Because of the seller's issues, the date for the lending papers won't be met. So since the lender has already sent the money, they have to get it back before anything can be done and then we have to give them a definite date that papers can be signed by both sides. Talked to more leads on support. No dice - too young, no resources for that, or we don't do that. Look at the state law, it may be the only thing we can do is put her into voluntary placement (fostercare). If the funding and families are there. Will be picking up Miri at 3 and then taking Eleri to her conference.
The future: We are on the waiting list for the psych unit. I am watching Miri this weekend with Ryan's help. Miri is responding to the Risperdal well. So that may be the magic pill for now. She'll probably be stable enough to go to school on Monday. We may request foster care. I need food.
Sunday: Miri has episode. Confusion about stepss to take. Eleri has meltdown & leaves, goes to ER for eval, avoids inpatient bed, comes home.
Monday: Blade has foot worked on, is more intense that usual, is on endorphin rush all morning. Takes week off. Eleri has head examined for face rearrangement. Surgery pending for both jaws. State agencies contacted for help with Miri. Mortgage lender calls and asks for some final numbers. Numbers do not meet what underwriters want... loan application is rejected.
Tuesday: Blade has words with lending agent. Agent promises action, but not results. Eleri has dentist appointment, finds several major issues to address before surgery, first round scheduled for Monday while Miri's at school. State agencies can't find placement for Miri. Lending agent pulls off miracle.
Wednesday Morning: Miri has severe reaction to new medication, meds Dr wants her off that med and to see her asap. asap, in this case, was 1 week later. Blade points out that a week of no meds is Bad Idea, appointment is scheduled for Thursday. Closing paperwork scheduled for Thusday am. Storage unit secured for Daf, because closing is delayed on house. Eleri calls with an official "I want my mommy!" request.
Wednesday Evening: Miri has very bad evening, hurts herself and Blade. Call Dr for advice, advice is to keep her stable until 3:45pm appointment Thurs. Escrow calls. Numbers from lender don't match purchase price, want extra $$. Response is Da HELL?? Too late to deal with, fix on Thursday. Miri episodes continue unabated until 3am, in between small 15-10 minute pockets of sedated sleep. Decision made that we can't keep her stable until morning, let alone late afternoon. Trek down to ER.
Wednesday Night to Thursday Morning: Spent 7 hours in the ER with Mousie to learn a lesson we already knew... if your body is broken there is a place for you, if it's your mind that needs help, you're on your own.
The short version of the story is that Miri's behaviours have been getting worse and worse, and the drug cocktails getting less and less effective, and last night, after multiple hours of hysteria and injury (to self and parents), we finally threw up our hands. Coming on top of the chaos with the house, and my health, and Blade's work, we knew we'd hit rock bottom, and couldn't guarantee her, or our, safety anymore. 7 hours later, all the professionals have many regrets, but the psych ward didn't have the staffing for the care she'd need, there's no sub-acute facilities that meet her needs, and no one really knows what to do except try and arrange more respite hours. So, if you have a violent, developmentally delayed kindergartener, and she needs more professional care than you can give? You're screwed. They give Miri some Risperdal(sp?) and our sitter agrees to take miri for a while so we can get rest
Thursday: 2.5 hours of sleep (fitfully gained, and added to the maybe 1 hour total since 08:00 yesterday) while sitter watches Miri we have to go, pick up the mousie from the respite person, and go back to the Dr, to try and figure out a drug combo that will keep Miri stable enough to go to scbhool, and afford Blade and Eleri some rest. Dr puts her back on Risperdal and is putting her on Lithium, after the requisite battery of tests for Lithium (EKG, blood tests, etc). Blade and Eleri got many cheese fries and food and then settled down to rest while Miri spent the evening at the sitters. Eleri has a Birthing from Within Conference this weekend and we decided she needs to go to get the recharge she needs to be functional. Ryan will be up this weekend for me. Eleri's mom will be up on Monday. Oh, and on the house... the paperwork for the seller's messed up situation hasn't gone through. So we can't actually sign.
Friday: Talk to the lender for the house. Because of the seller's issues, the date for the lending papers won't be met. So since the lender has already sent the money, they have to get it back before anything can be done and then we have to give them a definite date that papers can be signed by both sides. Talked to more leads on support. No dice - too young, no resources for that, or we don't do that. Look at the state law, it may be the only thing we can do is put her into voluntary placement (fostercare). If the funding and families are there. Will be picking up Miri at 3 and then taking Eleri to her conference.
The future: We are on the waiting list for the psych unit. I am watching Miri this weekend with Ryan's help. Miri is responding to the Risperdal well. So that may be the magic pill for now. She'll probably be stable enough to go to school on Monday. We may request foster care. I need food.
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no subject
Date: 2005-10-07 06:58 pm (UTC)i am really sorry that the resources aren't there for miri. and the other stuff is really a clusterfuck.
will pray for you all.
no subject
Date: 2005-10-07 08:47 pm (UTC)anyway, thanx. All prayers are welcome. :)
no subject
Date: 2005-10-07 11:56 pm (UTC)i should know, i've just been teaching exodus... ;>
no subject
Date: 2005-10-08 02:17 am (UTC)no subject
Date: 2005-10-08 01:12 pm (UTC)no subject
Date: 2005-10-07 06:59 pm (UTC)I wish there was more I could do.
no subject
Date: 2005-10-07 08:46 pm (UTC)no subject
Date: 2005-10-07 08:31 pm (UTC)no subject
Date: 2005-10-07 08:46 pm (UTC)no subject
Date: 2005-10-07 09:15 pm (UTC)no subject
Date: 2005-10-08 02:18 am (UTC)no subject
Date: 2005-10-08 08:07 pm (UTC)If I were omnipotent, here's where I'd put the magic words to fix everything and make it all better.
If I were eloquent, here's where I'd put the well-chosen words to bring you comfort and support.
Since I'm neither, you'll have to settle for:
*hug*
I'll try to be on AIM more, or at least, at all. E-mail me if you want to talk.