Miri Update
Nov. 7th, 2005 01:42 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
vaxjediWe went down this weekend to see Miri.
Miri seems to be doing well down there. They have had some behavior issues (she's bit one of the other kids down there) and she seems to be having trouble with transition times between big activities. She's almost off all of her meds and they are starting to see the hyperactivity and moodiness we saw before she got on a lot of her meds.
The visit itself didn't go very well. The first half hour was fine. She was happy to see us. She showed us around. She showed us her room. She told us about stuff she had been doing. It was about a half hour in that she realized that we weren't packing up her stuff and it dawned on her that we weren't taking her home. And that is when she proceeded to melt down. She was screaming "Don't leave me here" and "it horrible" and "I cant sleep here, it scary". She cried like we were about to leave her there forever. She pretty much set off the rest of the wing of kids at the same time.
I know that she was just upset because she assumed that since we were there, that we were taking her home. And I know she was just screaming and trying to get us to take her home with her. But it still hit me like a ton of bricks. I had to take some time to fall apart in the car before we left. We are considering not visiting again until we pick her up as not to set her off so much. The people at the facility said it was the worst they'd seen her. Of course, she is finally coming off of her meds.
Over the next few weeks, they are going to put together a behavioralplan that we can take to the state and say "This is what this family needs to have to take care of this child." At least we'll have something definite.
I miss Miri. it feels weird to not have her around. At the same time, there is a weird feeling of not having to be on guard at all times. Not worrying that the next phone call I get at work is going to be one where I need to run home to take Miri to the hospital or save Eleri from her. So much of my life has been focused around that reality that I'm not even sure what to do with myself while she is gone. And I don't know whether I am looking forward to her coming back, or I dread it.
Miri seems to be doing well down there. They have had some behavior issues (she's bit one of the other kids down there) and she seems to be having trouble with transition times between big activities. She's almost off all of her meds and they are starting to see the hyperactivity and moodiness we saw before she got on a lot of her meds.
The visit itself didn't go very well. The first half hour was fine. She was happy to see us. She showed us around. She showed us her room. She told us about stuff she had been doing. It was about a half hour in that she realized that we weren't packing up her stuff and it dawned on her that we weren't taking her home. And that is when she proceeded to melt down. She was screaming "Don't leave me here" and "it horrible" and "I cant sleep here, it scary". She cried like we were about to leave her there forever. She pretty much set off the rest of the wing of kids at the same time.
I know that she was just upset because she assumed that since we were there, that we were taking her home. And I know she was just screaming and trying to get us to take her home with her. But it still hit me like a ton of bricks. I had to take some time to fall apart in the car before we left. We are considering not visiting again until we pick her up as not to set her off so much. The people at the facility said it was the worst they'd seen her. Of course, she is finally coming off of her meds.
Over the next few weeks, they are going to put together a behavioralplan that we can take to the state and say "This is what this family needs to have to take care of this child." At least we'll have something definite.
I miss Miri. it feels weird to not have her around. At the same time, there is a weird feeling of not having to be on guard at all times. Not worrying that the next phone call I get at work is going to be one where I need to run home to take Miri to the hospital or save Eleri from her. So much of my life has been focused around that reality that I'm not even sure what to do with myself while she is gone. And I don't know whether I am looking forward to her coming back, or I dread it.
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no subject
Date: 2005-11-07 09:53 pm (UTC)i am glad Eleri is talking to the facility often, and i think that now that you have seen her room there, creating that space in the new house will be easier.
Ryan and i will continue to visit, and will of course keep you updated. i am hoping you are catching up on sleep, and taking some time for yourself. you guys have been very brave, to release her into this situation, not just because it was needed, but because it was the right thing to do.
as always, let us know if there's anything we can do on this end.
no subject
Date: 2005-11-08 04:08 am (UTC)no subject
Date: 2005-11-08 05:55 pm (UTC)