vaxjedi | Okie, this winter officially sucks...

So let me tell you about my winter so far....

Miri has no school this week, and has been a holy terror all weekend long. So I was not looking forward to the week anyway. It's been 6 months since our last major emergency-room crisis for Miri and they said we might have to expect it to happen about every six months. I haven't been sleeping well this weekend and felt like crap anyway.

I head off to work at a reasonable time, arrive at work at a reasonable time (for once). Then I have a revelation - in order to do computer work, one needs a computer. And that my work computer would be my laptop, which I'd taken home over the weekend, just in case. And which I'd left at home this morning. So I have to turn around, race home and get my computer and race back to work and start working.

A few people at work had real big issues with the storm. Several had their power out all weekend. One had a big tree fall on their house. So I was counting my blessings that we didn't get hit hard by the power outages - only a day or so.

But, it turns out that the pharmacy that provides one of Miri's meds was without power until this morning. Now, this isn't off-of-the-rack meds - it's a compound that has to be mixed by hand. And only a few pharmacies can do it (when we first went to this one, they had to look it up before they could tell us they could do it). But, having no power, there was no way they could tell us. And we were going to pick up those meds today, as Miri is out of them today. So they get a hold of us and tell us they can't get it done until Wednesday at the earliest, as they have only one person who can do this and they are a week behind because of the storm.

Oh, and did I mention, they are moving Miri to a new anti-psychotic, as of this morning?

Eleri calls the neurology doctor to see about an emergency prescription for a backup med. The neurology dept at Children's is closed down. We can't get through to the pharmacy there. She calls our general practice doctor - that clinic is swamped because they are standing in for two other clinics that don't have power. But they say they'll send our issue as a high priority through to the doctors.

So, I decide that it's time to come home. My manager has asked that I be proactive about absences (in the vein that if I have to be out and they know ahead of time, they can plan around it). So I talk to her and get the rest of the day off, and Tuesday and Wednesday, since we don't know if Miri will be fully medicated until then.

And on the way out of the parking garage, I find that the passenger mirror on the rental van I'm driving is cracked (our van is still in the shop from being sideswipped during the big ice storm right after Thanksgiving).

So I'm home now. We got a call back from the doctor - they pushed through a weeks worth of the backup meds. But it looks like it'll be lower doses than normal. Woo. Good times.